I am sure you have seen this list of often heard gaffs…things not to say to someone with Multiple Sclerosis. You have probably heard a few yourself first-hand. These swallowable snippets are oft-uttered by someone trying to relate. To make conversation. And fail miserably. Hey it happens. We’re humans. We just don’t know when …
‘Tis the season celebrated with family & friends. Warmest greetings are exchanged. Hearty hello’s & well wishes along with embraces of fellowship. Hugs are given to all within reach…graciously accepted by everyone–except this guy…who is shakily standing there, teetering on two canes. You see, with multiple sclerosis, comes piss-poor balance. And the simplest …
“Thank you for riding MS Express, the fastest, most-direct route for disease progression. Please remain seated till the train comes to a complete stop. We welcome you to Frustration Station!” You and I have been here before. Many times, in fact. Sometimes I get so frustrated having multiple sclerosis, I could …
Are you curious as to why I am celebrating? It’s because September marks my 25th MS anniversary! Hol-ee crap. A quarter century. I haven’t been this happy since I stepped on a nail. It was early September of 1996, when during a routine physical, my family doctor said “I think you have multiple sclerosis.” …
Quiet as a moose. That’s right. It’s not a typo. Moose. Not mouse. Moose. Multiple sclerosis has turned me into a walking, err, scuffling noisemaker. Hospitals could hire me to wake people from a coma. I don’t understand how it happens. I am trying to be quiet but the harder I try-the more …
It pains me to admit since my MS diagnosis in ’96—-I am different. REALLY? How did you come to that conclusion, Einstein? Was it the wheelchair? Rollator? Hand controls on your car? Or was it the half dozen canes scattered throughout the house & garage? No no no, of course I am different physically…heavier, flabbier, …
Sometimes you need to take a moment to see where you are. Take in your situation. Realize how lucky you have it. Because there is always someone worse. Recent events changed the party theme for me as I tumbled down our stairs and broke my right collarbone. (Also broke the index finger on my left …
I have been using two canes for my main mobility about six years now. My canes are never far from my reach. And they are ALWAYS together. Sometimes I wonder if they could talk—what would they say to each other? Time for some “Cane Play”……. …
I am a leaner. Can’t help it. And frankly, I blame multiple sclerosis. I lean. On everything. Have since about 2005. I feel as though I am going backward on the evolutionary scale because of my prominent “poop stoop” leaning posture. I point my shaky finger at MS for …
Sometimes I fail to do the right things for multiple sclerosis. Now is the time to enter the booth and admit my wrongs. Forgive me doctor for I have stumbled (Sorry, no pun intended). I have been in conversation with a familiar person while being unable to recall …
